PROUD TO SUPPORT LUCY VAN KENDALL & FAMILY – RECIPIENT FOR 3RD QUARTER 2020

100Brokers • September 19, 2020

100Brokers Members voted and we are very pleased to announce that we will be sending a cheque in the amount of $10,000 to Lucy Van Kendall & Family Recipient of the 3rd Quarter vote of 2020.

 “Thank you so much for thinking of us and submitting our family for the 100 Brokers Who Care grant. It was a wave of positivity and support that we needed. It’s been incredibly challenging fighting through this and knowing that a group of complete strangers had a group discussion & selected us means so much. Please pass our love to the rest of the team!”

Lucy was born in April 2020 and diagnosed with Spinal Muscular Atrophy (SMA) 5 weeks later. SMA is a genetic disease affecting the central nervous system, peripheral nervous system, and voluntary muscle movement (skeletal muscle). Most of the nerve cells that control muscles are located in the spinal cord, which accounts for the word spinal in the name of the disease. Her life expectancy is 2 years without treatment.

Lucy is a good candidate to receive a groundbreaking gene therapy treatment for SMA called Zolgensma which could save Lucy’s life. This will NOT cure her, but it will hopefully replace 40-60% of the missing gene and allow Lucy to live, but there will be many costs for them for the long term, from wheelchairs, to treatments, nurses, care, help, and more. I am hoping that this $10k can help them with all the extra costs.

Thank you to Laura MacCormack for bringing this Cause to our attention.

Nomination Story
The “Van Kendalls” – Laura, Scott, Sullivan (2017) & Lucy (2020). They live in Vancouver and they are my clients.

In 2015, they got married and started their family in 2017. Lucy was born in April 2020 and they found out 5 weeks after she was born that Lucy has SMA. Spinal muscular atrophy (SMA) is a genetic disease affecting the central nervous system, peripheral nervous system, and voluntary muscle movement (skeletal muscle). Most of the nerve cells that control muscles are located in the spinal cord, which accounts for the word spinal in the name of the disease. Her life expectancy is 2 years without treatment.

Lucy is a good candidate to receive a groundbreaking gene therapy treatment for SMA called Zolgensma. Zolgensma could save Lucy’s life. They started a fundraiser and Lucy is getting the treatment in September. But this will NOT cure her, it will hopefully replace 40-60% of the missing gene and allow Lucy to live, but there will be many costs for them for the long term, from wheelchairs, to treatments, nurses, care, help, and more. I am hoping that this $10k can help them with all the extra costs.

Currently they are living in a small 2 bedroom apartment, with 2 kids, and nurses there on rotation and Scott working from home for his job to keep the family going financially (working from the kitchen, as Lucy sleeps in the living room as they need the space for all the machines required for breathing at night, feeding through a tube, etc).

Lucy will need a lot of care for the rest of her life.

By Brokers Who Care February 16, 2026
Brokers Who Care voted and we are pleased to announce that we will be sending a cheque in the amount of $10,000 to Let's Cure Lucas - Fighting an Ultra-Rare Genetic Disease our Recipient of the 1st Quarter 2026 vote. Thank you Rocco Mongelli for bringing this Cause to our attention. Lucas Azevedo is a four-year-old with an ultra-rare gene variant affecting the RBM28 gene—a condition so rare that only one other child in the world has been discovered with it. This disease is currently unnamed and has no cure, but his smile and spirit inspire everyone around him.  Lucas lives with significant physical challenges. His ultra-rare gene variant affects all four of his limbs, his balance and coordination, his speech, his oral strength, and much more. His muscles are both tight and fragile, making even the simplest movements a challenge against gravity itself. Nothing happens automatically for him—every movement requires intention, strength, and support. The RBM28 variant affects his cerebellum, the area of the brain vital for coordinating voluntary movements, balance, posture, and motor learning. While there is currently no cure, gene therapy has been developed and has proven successful in stopping progression for many ultra-rare diseases. Lucas's family is hopeful about ongoing research and potential breakthroughs. In the meantime, Lucas works incredibly hard six days a week undergoing physiotherapy, occupational therapy, speech therapy, swallowing therapy, and hydrotherapy to build strength and independence. His goal is to walk independently, run, jump, and ride a bike. Your support directly funds the therapies and care that allow Lucas to keep fighting and growing stronger. Together, we can help this remarkable little boy achieve his dreams and contribute to the research that may one day lead to a cure. Thank you for standing with Lucas and his family in this urgent fight.
By Brokers Who Care February 16, 2026
Brokers Who Care voted and we are pleased to announce that we will be sending a cheque in the amount of $10,000 to Lisse's Family Fighting for Healing and Stability our Recipient of the 1st Quarter 2026 vote. Thank you Lauren Sbitney for bringing this Cause to our attention. Lisse and her husband Zach are facing an urgent crisis after Lisse was diagnosed with aggressive MS that threatened complete paralysis. In January 2025, emergency hospitalization revealed major spinal lesions, and she was told she could lose all mobility within months. Desperate to save her life and health, they drained their life savings and fundraised to pursue a stem cell transplant in Mexico. While the treatment has halted the disease's progression, recovery requires one to two years of intensive care and therapy. Eight months in, Lisse continues to make slow gains alongside expected setbacks. With Zach unable to work since December 2024 to care for both Lisse and their 10-month-old daughter Effie, the family is drowning in mounting debt despite living on an extremely tight budget. Their income-assistance application is still pending after six months of waiting.  They urgently need support to access therapies that could meaningfully accelerate Lisse's healing and provide their family with basic stability. Your help would ease their financial burden and allow them to focus on recovery and giving Effie the secure childhood she deserves.
By Brokers Who Care November 3, 2025
Brokers Who Care voted and we are pleased to announce that we will be sending a cheque in the amount of $10,000 to Andrea Mundie our Recipient of the 3rd Quarter 2025 vote. Thank you Marci Deanefor bringing this Cause to our attention. Andrea Mundie is a devoted mother of four—Rex, Dace, Clove, and Penn—facing the fight of her life. Already living with Stage 4 cancer, she has now been diagnosed with leptomeningeal disease, a rare and aggressive complication. Her priority is simple yet profound: to spend meaningful time with her children and create lasting memories while she can. To extend her time, Andrea has begun permanent chemotherapy. But the financial strain is overwhelming. Many of her most urgent needs are not covered by insurance. Funds raised will directly support: Health and wellness costs to ease her treatment Meals and home care for her children Educational expenses to secure their futures Despite her challenges, Andrea’s resilience shines. She celebrated her 50th birthday with loved ones, even while beginning chemotherapy. Soon after, she faced emergency surgery where her heart stopped and doctors cracked her ribs and sternum to save her life. Through it all, she has held onto positivity and humor. A grant from 100 Brokers Who Care would ease Andrea’s burden, giving her peace of mind and the ability to focus on what matters most—her children. Your support will provide comfort, dignity, and precious moments of love and memory.
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